Fireside Chat: Moving Rare Disease Communities Forward

Session details:

Join us for an intimate conversation exploring the evolving rare disease landscape through the lens of Camp Small Steps, UCB’s unbranded program for Dravet Syndrome—a rare, severe form of epilepsy. In this literal “campfireside chat,” UCB will share how the program was co-created with caregivers and evolved with feedback and iterations along the way from families and Dravet loved ones. From early concepting with the community to five camps hosted across the country, we’ll discuss the realities and opportunities of rare disease communications—and how creative storytelling and engagement can move patient communities forward, one small step at a time.